A Sense of Well-Being & SMA Parents Skeptical About Spinraza

We discuss how a sense of well-being tied to ability, take part in life and engagement with SMA patients. Also, Community Editor Kevin Schaefer reads from a post in the SMA News Today forums. This post provides advice for SMA parents whose kids are skeptical about taking Spinraza.

Link to Kevin Schaefer's article: https://smanewstoday.com/forums/forums/topic/when-your-child-with-sma-doesnt-want-to-do-spinraza/

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit www.exploregenetherapy.com

We discuss how a sense of well-being tied to ability, take part in life and engagement with SMA patients. Also, Community Editor Kevin Schaefer reads from a post in the SMA News Today forums. This post provides advice for SMA parents whose kids are skeptical about taking Spinraza. Link to Kevin Schaefer's article: https://smanewstoday.com/forums/forums/topic/when-your-child-with-sma-doesnt-want-to-do-spinraza/ Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit www.exploregenetherapy.com