Learning more about INAD & how you can help
Season 9, Episode 23, Dec 15, 2022, 05:51 PM
INAD (Infantile neuroaxonal dystrophy) is a devastating ultra-rare condition that affects children from a very early age.
Rebecca Skeates tells us about her family's experience with the condition, search for a cure and her deep involvement in INADCURE Spain.
Their campaign aims to raise 7 million dollars/euros to fund a new gene therapy clinical trial. It seems a lot, but if 1 million people donated 7 dollars/euros they would reach their target. Please consider donating so you can make a difference in a family's life:
Link to the donations page for the “Súmate, Suma 7” campaign in Spain:
https://inadcurespain.org/sumate-suma7/
Rebecca Skeates tells us about her family's experience with the condition, search for a cure and her deep involvement in INADCURE Spain.
Their campaign aims to raise 7 million dollars/euros to fund a new gene therapy clinical trial. It seems a lot, but if 1 million people donated 7 dollars/euros they would reach their target. Please consider donating so you can make a difference in a family's life:
Link to the donations page for the “Súmate, Suma 7” campaign in Spain:
https://inadcurespain.org/sumate-suma7/
International donations - “One gene, one dream” campaign (INADCURE US):
https://give.inadcure.org/campaign/one-gene-one-dream/c407538
Music Credit: Dream of Beauty - Free Music Archive
Photo Credit: INADCURE Spain
https://give.inadcure.org/campaign/one-gene-one-dream/c407538
Music Credit: Dream of Beauty - Free Music Archive
Photo Credit: INADCURE Spain